I have just recently heard the phrase “Care Team” when referring to the group of individuals that help me manage my epilepsy. A care team can involve: your therapist, your specialist (neurologist, epileptologist, etc.), your primary care provider, and most importantly your caregiver as well as other members of your support network. I believe this phrase is named perfectly. Why? All of the people mentioned above should be working together as a team.
I experienced this while seeing my epileptologist (a neurologist that specializes in epilepsy) at a local hospital. They didn’t have a single doctor analyzing my case, but an entire team devoted to my wellbeing. They wanted to know how epilepsy was affecting me psychologically as well as physically. I also felt like the doctors genuinely cared even though they tried to maintain a certain boundary between doctor and patient.
Unfortunately, my care team might change a little over the next few weeks. I need to change insurance and I might have to change doctors as a result. Change can be a frightening thing when dealing with a chronic illness and epilepsy is no different. I am scared that everything is going to change for the worse! I am trying to keep up a good façade so that people don’t see the fear. I don’t want my care team to change, but as always I will do my best to adapt to the changes.