Fear & Epilepsy

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What are your epilepsy fears?

I believe the photo above does a great job of illustrating the main ones.  Some people who do not have epilepsy fear “catching” epilepsy.  It is not contagious like the flu, and that will never happen.  Strangely my fears are a little different:

  1. Missing time-lapse – I had a particularly bad seizure one time when my tonic-clonic seizures would not stop, so we called 911.  I woke up at the hospital thinking that I had only been there for a few hours, when I had actually been there for two days.  I had lost two days and don’t remember a single thing that happened during that time.  My ex was there and filled me in on all the stuff that I missed.
  2. Medicine effects – I am also afraid of the long-term effects of my medicine.  However, I know that I must take them.  If you have ever read that long list of medicine side effects than you know what I’m talking about.
  3. Job loss – My job doesn’t pay a lot, but I’m still afraid of losing it because of seizure-related activity.   I haven’t told my employers about my chronic illness, so an incident would cause some conflict.

What are your epilepsy-related fears?

 

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