Day 26 Chronic Illness Challenge


On day 26 of my Chronic Illness Challenge, we discuss:

What impact has this had on your family, friends, partner, parents, etc.

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Day 24 & 25 Chronic Illness Challenge


Day 24: How have you managed to juggle your social life through your illness?

I am introverted and shy.  As a result, I do not have the most happening social life.  Occasionally, I meet with my science fiction group, astronomy group, and attend a few science lectures.  I know I’m a geek and proud of it!

I don’t meet with them as much as I would like.  Teaching a class full of lively 18 year olds in college is exhausting for an introvert like me. Work related stuff frequently gets in the way when I’m not exhausted.

Frequently social events include alcohol.  I do not drink any alcohol to prevent any complications with my medicine.  I have also been told that drinking alcohol if you have epilepsy can lower your seizure threshold.  It is hard for me to get motivated to go to events when I know alcohol is going to be there.  I sometimes find myself making excuses not to go because I feel like the only one there not drinking it.

Day 25: Name 5 activities you have managed to pursue while being ill, and 5 activities you have done that you wouldn’t have pursued if you hadn’t become ill.

5 Activities I managed to pursue while being ill

  1. Masters of Science in Physics
  2. Masters of Education (helps enhance ability to teach previous subject)
  3. Taught/tutored mathematics in higher education
  4. Taught introductory physics courses in higher education
  5. Frequent attendee of local free stargazing events at Museum of Science

5 activities you have done that you wouldn’t have pursued if you hadn’t become ill

  1. Started this blog
  2. Started a twitter account to enhance dragonandrose
  3. Created first podcast post about first seizure.
  4. Modified Atkins Diet (or at least an attempt at a low carb high fat diet)
  5. Ate sardines.  I know this seems a bit simplistic, but I never would have eaten them if my pcp had not recommended them since they are high in healthy fats.

Day 22 & 23 Chronic Illness Challenge


Although it has been long past 30 days since I started this challenge, I thought I would finish what I started.    Today I am going to cover days 22 and 23 of the challenge.

Day 22: How do you feel you have been treated by the medical system? Explain.

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Day 21 Chronic Illness Challenge


What networks or websites have you used for support or information about your illness?

Local Epilepsy Foundation support group – They have been a good resource of information for years and sometimes it is good to ask fellow patients who are also going through the same problems that you are facing.  They also help provide support in times when you feel no-one else will understand.

Websites

I am a bit of an internet junkie.  I have obtained quite a bit of information from some reliable websites.

Epilepsy Foundation

CURE: Citizens United for Research in Epilepsy

Talk About It

Google News Feed – If you tailor your google news feed for ‘epilepsy’, it can be a great resource to help you find the latest epilepsy news.

This is just a short list of the most helpful (in my opinion).

 

Day 20 Chronic Illness Challenge


I am attempting to make up for lost time.  On day 20 we will discuss:

Did you meet anyone with the same illness?  Did it help?

I have met some people in person at Epilepsy Foundation support groups.  Talking with them has always been a helpful experience.  I would definitely recommend it to persons who are newly diagnosed.  From the various conversations and advice from the support group, I was able to get a lot of useful information such as: constructing an epilepsy diary of my own and coping with stress at my job.

I have also met people online via twitter who also have epilepsy.  It gives you the opportunity to meet people all over the world.  I find this method to be helpful also.

Day 19 Chronic Illness Challenge


Day 19: How do you feel about the future?

Retirement will not be a reality for me.  I am doing my best to save some money, but it is not going to be enough for me to live for years without working.

If my health takes a turn for the worse, a more likely future is that I will have to stop working and apply for disability.  I have been trying to take better care of myself by eating better and going to the gym.  I got a membership, but need to go more often.

I guess I am having a hard time seeing my future as nothing but difficult.  Occasionally when I hear news about new findings in epilepsy research, it does give me hope.

 

 

Day 18 Chronic Illness Challenge


We are well over halfway through the Chronic Illness Challenge.  On day 18 we explore the question:  Do you think you have become a better person through being ill? Explain.

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