Day 22 & 23 Chronic Illness Challenge

Although it has been long past 30 days since I started this challenge, I thought I would finish what I started.    Today I am going to cover days 22 and 23 of the challenge.

Day 22: How do you feel you have been treated by the medical system? Explain.

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Days 13 – 17 Chronic Illness Challenge

Work got in the way once again and I fell behind in my chronic illness challenge.  I am determined to see it through to the end, so I will post answers to multiple questions today to make up for the loss.

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Another Virtual Coffee Date

It is almost the end of January 2016, and time for another Virtual Coffee Date.  Go ahead and grab a hot beverage, and I will tell you what has been happening.  Make sure you have a large mug because I have a lot to tell you.

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Was I being a stubborn patient?

Earlier this year, I switched to a cheaper insurance plan without doing a proper investigation.  I should have taken the time to find out if my neurologist takes my new insurance.  They did not take my new insurance, so I could not see my neurologist.

I am happy to say that I have switched to a new health insurance plan.  I did my homework this time, and my neurologist does take this health insurance.  I have an appointment to see her next year.

She is probably not very happy with me.  I made the decision to simply wait until I have new insurance to see her again.   As a result, I haven’t seen her in over 6 months.

Was I being a stubborn and rebellious patient?  Probably. However, she knows my history and does a great job of monitoring my condition.  It is important for me to have a specialist that I trust.

The Virtual Coffee Date


For day 10’s assignment on Writing 101, we are having a virtual coffee date.  Take a second to go grab your hot beverage of choice, and I will update you on what’s been going on.

If we were having coffee right now I would tell you that I have maintained my position on refusing to get a new neurologist.  I like the one that I have.  I’m going to just change my health insurance, and then I can see my neurologist.  I am probably being stubborn, but why change a system that is working?

If we were having coffee right now I would tell you that I have an appointment coming up with my primary care physician.  While it is only for a checkup, I hope there will be no bad news.  I have been getting mysterious blood blisters in my mouth, and I am a little nervous about the upcoming appointment.

If we were having coffee right now I would also tell you that the Fall semester has begun at both colleges that I teach at.  I hope for a semester free of any major seizures.  My attempt to find a full-time job in higher education did not succeed, but I did get a few interviews.  It is a positive step in the right direction.

If we were having coffee right now I would tell you about the Writing 101 class that I am in right now.  I feel like it is making me a better writer, and that I am getting into the habit of writing more.  I am only half way through the course, and can’t wait to see what lies ahead.

Frustration, Health Insurance, and Job Hunting

Today I am feeling a great deal of frustration.  I wanted to resolve my health insurance problem quickly, find a place of my own to live in, and get full-time employment.  Things did not go as planned.

In Upcoming Interview, I talked about an interview that I had in one of the colleges that I work for.  Despite the fact that I was incredibly nervous, I thought I did okay.  A few weeks later I found out that the position was cancelled.

In ‘I refuse to change neurologists!‘, I talked about the current problem that I am having with my health insurance.  I tried calling various people, and even went to my hospital’s patient financial councilors who help you with this kind of thing.  Unfortunately, I did not get the result I was hoping to hear.

I am feeling more than a little frustrated with my lack of results.  I can only see two ways things can play out:

  1. If I continue my quest for a full-time job, I would get health insurance benefits, financial stability, and eventually a place of my own.
  2. I may have to cave in and see a new neurologist.

I sent a message to my current neurologist to see what strategy she recommends, but have not heard back from her yet.  When I talked to someone else about this, and they thought it was great that I had insurance that was not dependent on your job.  Am I wrong to think that getting a full-time job will solve all my problems?

Epilepsy & Switching Health Insurance

I found myself with some free time today, so I used it to try to find a solution to my health insurance problem.  I have not been able to deal with it yet because of work.  I have tried to finish up some end of the semester details at one college while getting ready to start a new semester at another.

I was told by a contact at my primary care physician’s office to consider switching insurance.  I called various people for three hours.  I even made sure to throw in the words epilepsy, chronic condition, and neurologist to let them know that my case was important.  The system that my state uses for people to apply for affordable health insurance will not let me switch insurance until a specific time unless you have a ‘qualifying condition.’

Right now, I’m trying to find out if there are other options.  These are the ones that I can think of at the moment:

  1. Don’t see my neurologist until I have new insurance.  She would not be happy with this option, but she is not cheap and I can’t afford an expensive doctor bill at the moment.  Paying out-of-pocket is not an option.
  2. Keep the current insurance, despite its obvious flaws, and change neurologists.

If you have other suggestions, do not hesitate to let me know.   Switching insurance while maintaining my affordable health insurance doesn’t seem possible at the moment.  “The system” will let me switch in November at the earliest.